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Take a look at the research from the long-term care surveys.
The Associated Press-NORC Center for Public Affairs Research, with funding from The SCAN Foundation, is undertaking a series of major studies on the public’s experiences with, and opinions and attitudes about, long-term care in the United States.

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AP_LTC_2017-09-19_166x110.pngLong-Term Caregiving: The Types of Care Older Americans Provide and the Impact on Work and Family

This survey from The AP-NORC Center dives into the experiences of providers and recipients of long-term care, examining what caregivers do, how they are trained, and how they balance caregiving with other aspects of their lives. It finds that caregivers provide a wide range of assistance, though few have received formal training. And while many describe caregiving as difficult, more than half say providing care has a net positive impact on their life.

 

LTC-Hisp_Hero_166x110.jpgLong-Term Care in America: Hispanics’ Cultural Concerns and Difficulties with Care

This analysis of The AP-NORC Center’s fifth annual Long-Term Care Poll explores the language and cultural barriers older Hispanics face in the health care system and how they can impact care. It finds that nearly half have encountered a language or cultural barrier, and more than two-thirds say it has led to additional stress or delays in getting care. Additionally, many lack confidence that the long-term care services in their area can accommodate the cultural needs of Hispanics.

 

Long-Term Care at Home: Understanding the Range of In-Home Services Available

Millions of Americans require support with activities of daily living due to aging, and the majority of this assistance takes place in home and community settings, not institutions like nursing homes. This video interactive from The AP-NORC Center explores how home health care aides factor into the overall home care picture and uses findings from the 2017 Long-Term Care Poll to understand what older Americans expect from them.

 

 

LTC-Screen-Grab_166x110.pngAging in America: 5 Things You Need to Know About Long-Term Care

Long-term care comes with high costs, both for those who need care and the families who support them. With an aging population, many people in America will be receiving or providing long-term care in the future but haven’t yet prepared. The AP-NORC Center’s latest video outlines five key things Americans should be thinking about when it comes to the care they may need as they age.

 

Older Californians' Long-Term Care Experiences and Policy Preferences

An analysis of The AP-NORC Center’s fourth annual Long-Term Care Poll takes a close look at older Californians’ awareness of, and support for, California’s Paid Family Leave Program. The results reveal that while the program is popular among Californians age 40 and older, many would not feel comfortable using its benefits. The poll also continues to track how Californians age 40 and older compare to residents in the rest of the United States in their support of various policies to help Americans prepare for the costs of providing and receiving ongoing living assistance.

 
 

Long-Term Care in America: Concerns and Expectations among Hispanics

​An analysis of The AP-NORC Center’s fourth annual Long-Term Care Poll looks at what Hispanics age 40 and older worry about when they think about aging, whether or not they feel prepared to provide care to a family member or friend, and where they would prefer to receive care or provide care to a loved one. The survey continues to track long-term care attitudes, experiences, and planning behaviors.

 

Long-Term Care in America: Expectations and Preferences for Care and Caregiving

​The 2016 study investigates new issues, including potential sources of support for care, preferences for receiving and providing care, attitudes toward paid family leave, and support for other policies to help people prepare for the costs of receiving and providing care.

 

Hispanics’ Expectations and Planning for Long-Term Care

​This analysis of The AP-NORC Center’s third annual Long-Term Care Poll uses an oversample of Hispanics age 40 and older to examine the behavior and attitudes toward care for this important, growing demographic group. It finds that very few Hispanics report planning for long-term care, and they are worried about the lack of preparation. It also reveals several key differences in planning and attitudes toward long-term care between Hispanics and non-Hispanics.

 

Long-Term Care in California: Policy Attitudes and Perceptions

The 2015 study continues to show that while a large share of Californians age 40 and older say that they expect to need long-term care in the future, many have done little or no planning for their care needs and lack knowledge and confidence on the financial aspects of long-term care. It also provides an in-depth look at public opinion on key long-term care policy issues including how caregivers are trained and paid under the In-Home Supportive Services (IHSS) Program for eligible recipients of long-term care services.

 

Long-Term Care in America: Americans’ Outlook and Planning for Future Care

The 2015 study explores new issues, including person-centered care experiences, the perceived role of private health insurance plans in financing long-term care, and the special challenges faced by those who provide ongoing living assistance to elderly loved ones while also supporting children. The survey continues to track long-term care attitudes and planning behaviors.

 
Long-Term Care: Experiences of Hispanics in the United States

The 2014 study included an oversample of Hispanics age 40 and older, providing a unique opportunity to take a closer look at how Hispanics in the United States cope with various aspects of aging and providing care, how they prepare for their own long-term care needs, and how their experiences compare with other Americans.
 

Long-Term Care in California

          The 2014 long-term care study digs deeper into the experiences and opinions about long-term care among Californians age 40 or older. California’s diverse aging population allows for a closer examination of how a variety of demographic groups—including foreign-born adults, those in multilingual households, and those in multigenerational households—experience long-term care in America.

 

Long-Term Care in America: Expectations and Reality

The aim of this 2014 study is to understand better who is providing and receiving care, how caregiving impacts family relationships and personal experience, how Americans 40 or older use information on long-term care, and which policy measures they think would improve long-term care.

 

Long-Term Care: Perceptions, and Attitudes among Americans 40 or Older

The U.S. population is aging rapidly, with projections that the population of those over age 65 will nearly double by the time the last baby boomers reach age 65. In 2000, seniors comprised 12 percent of the U.S. population. By 2030, that number is expected to rise to 19 percent or 72 million Americans over the age of 65. U.S. Department of Health and Human Services projections estimate that 70 percent of Americans who reach the age of 65 will need some form of long-term care in their lives for an average of three years. With the aging population come important social and public policy questions about preparing for and providing quality long-term care examined in this 2013 study.

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